Agenda for RINK Meeting: INNS meeting
Date: September 12, 2024
Proposed time: 8am- 2 or 3pm
| 8:00 to 8:30 | Breakfast |
| 8:30 - 8:45 | Patient life experience- Michael Savela |
| 8:45 - 9:00 | Welcome/Introductions/Review of the Mission & Rules of Engagement: Dave Selewski, MD |
| Ongoing Studies and Studies not yet approved: Seeking Feedback and identifying New Centers | |
| 9:00 - 9:30 | AWAKEN 2.0/ AKI Follow-up study (Michelle Starr, MD) |
| 9:30 - 10:00 | Outcomes after Amnioinfusion for Fetal Renal Failure due to BRA or other severe CAKUT (non RAFT) Shina Menon, MD |
| 10:00 - 10:15 | "Neurodevelopmental outcomes and engagement with special outpatient support services after neonatal kidney replacement therapy" Melissa Zhou, MD |
| 10:15 - 10:30 | Break |
| 10:30 - 10:45 | Meredith Schuh Bilateral CAKUT and Hepatoblastoma |
| 10:45 - 1100 | Michelle Starr WE-ROCK I3 |
| 11:00 - 11:30 | Update on Almond: Secondary Analysis of Preterm Erythropoietin Neuroprotection Trial (PENUT) study |
| 11:30 - noon | Russell Griffin, PhD |
| 12:00 - 1:00 | Break/ Lunch |
| Developing studies | |
| 1:00 - 1:10 | Working Groups: Instructions David Selewski, MD |
| 1:10 - 2:45 |
Working groups developing study ideas from the previous meeting: Groups may continue to work on previous ideas or develop new ones
|
| 1:45 - 2:00 | Break |
| Work groups for New Opportunities | |
| 2:00 - 3:00 | Working groups Feedback on study ideas above and Free form ideas/ Open Microphone |
| 3:00 - 3:15 | Closing |